It’s Okay to Lack

For most of my life, the same people were around me. I’m sure we had our awkward moments, but my friends had grown comfortable with my disabilities. Past the third grade, I don’t remember feeling as if I needed to “train” my friends on how to handle my high-risk limitations.

If my friends had questions about my disabilities, they either didn’t ask them, or they learned to watch me closely and found the answer themselves. My world was simple. My friend group was small, but everyone had my back and I had theirs. Any chronic issues of my life were talked about as if they were everyday occurrences and common knowledge.

Over time, I forgot I was disabled. But then I returned to Indiana to attend college.

All the sudden, my body-guard best friends were nowhere to be found. I was the new kid on the block, and I was obviously an oddity that needed observing. I quickly discovered my disabilities were still scary to some people, and down-right annoying to others. My confidence took a hit every time I had to apologize for my twitching limbs, my awkward stutter, or my random seizures.

It felt even worse every time I had to explain my limp, my crooked arm, or the reason I eat food with my right hand squeezed between my legs at all times.

I swallowed my pride and pushed forward, though. My new circle of friends learned to chuckle at my quirks, accept my limitations, and they realized asking for help didn’t mean I was weak. For the first time in two decades, I had to learn how to teach my friends.

Learning how to teach Peter, first as a boyfriend, and then as my husband, was a totally different experience. He had a right to know what was actually happening to my body, but all I wanted to teach him was how to cope with the awkwardness of my existence. I felt like I had something to prove.

Every time I attempted to prove to Peter that loving me was a totally normal and romantic adventure, I failed miserably. Most times, my attempts to prove my independence and strength left us both hurt, scared, and confused. For a time, I didn’t really care about the price of my short-sighted actions.

My antics were based on my fear of losing Peter. I was confident that if he realized how broken the cage of my body was, he’d walk away from me entirely because I was too high maintenance. I had to learn to trust Peter, and I had to learn to accept that God could equip Peter to handle my disabilities better than I ever could. We both learned—through trial and error—that our marriage needed authentic transparency and a willingness to talk through anything.

Training my friends how to handle my disabilities had been easy. I helped them cope with the differences because I love them. But with my husband, I had to let him help me bear the load because he loved me. Supporting me and defending me are two things he is biblically called to do as my husband.

I had to learn how to trust Peter’s heart and countenance with the Lord. When we confront yet another medical hurdle, I’m often unable to be exactly what Peter needs in a wife. It’s during those seasons, as a wife, I run to my Jesus and shout at the top of my lungs, “In my weakness you are strong, Jesus. You have to be enough.”

Our marriage is beautifully lacking in quite a few ways. But when my physical limitations force me to fall short for Peter, I’m forced to look for Jesus. And in much the same way, when Peter can’t fix, understand, or help bear my turmoil, he is forced to realize in a much deeper way that Christ is my savior, not him. We’re both learning to remember that although we may still be learning what coping with disabilities is like, Christ is all-knowing and never had to be trained in the first place.

(Over the next several months, to find the other blogs in this series, type marriage with disabilities in the search bar.)

Broken, Scared, & Beautiful

Shortly after my last post, my husband, Peter, and I were approached by some very sincere, genuine people asking us hard questions. Questions like:

“How do you do it? How do you make marriage work? Why did you choose each other? How can this be a good marriage when there’s so much turmoil underneath it?”

Peter and I have not hidden the fact that I am frustratingly disabled, that it impacts our marriage, and that my disabilities have been the crux of some beautiful God-sightings in the last year. To-date, I have cerebral palsy, epilepsy, broken heart syndrome, and a blessedly evasive anxiety disorder. It makes for some splendid fun (or somethin’).

Early on in our dating relationship, we had a few, very brutal-to-my-heart conversations about how I couldn’t sugarcoat the emotional and mental price I paid for the body I live in. Originally, I had a plan. The plan was to hide everything from Peter, and lead him to believe having a disabled significant other wouldn’t be hard. After witnessing a seizure which lasted a horrendously long afternoon, Peter gave me an ultimatum:

Tell the truth, trust him, or walk away.

For a woman who had been led to believe men wanted the perception of perfection and nothing else, that gentle demand was a harsh change of perspective on me. But from then on out, he slowly and methodically learned every dot and tittle of what living in my disabled self meant.

Two months before we were married, my strong-as-an-ox, healthy-as-a-horse future husband signed over as my Power of Attorney an hour prior to an emergency surgery which had more risks than we wanted to admit. Peter handled it like the God-fearing man he is, and signed on the dotted line after phrases like, “In the event this patient cannot respond, I the undersigned…”

Whatever dreams we had of riding off into the sunset together as a married couple came with a few clouds. And a horse with a limp. And no money. And… so many things which we weren’t willing to admit scared us.

Regardless, after all that, we thought transitioning into marriage with disabilities included would be a breeze–or at least a low-challenge adventure.


The next season of posts — maybe three, maybe 40, maybe a 300-page book in the making — are thoughts we wish someone had shared with us before we were married. Thoughts about sharing a disability between two people but one deformed body. Thoughts about what it means to give up perceptions of perfection in order to strive for fairness and sacrificial love.

Mainly, you’ll hopefully find practical “You need to think about this” stories and anecdotes which made us shake in awe and wonder at the greatness of our God and how marriage points us to Him. Most of these posts will likely take on a “She-Said-He-Said” approach. We are both authoring these entries. They will all be real. They will all be raw. Some of them will be a bit terrifying.

And if you are like me–Peter–whose life hasn’t been controlled by the challenges of disabilities, I hope and pray you read these stories as things to glean from for your own marriage. Ultimately, I pray this series reminds you that marriage at its core has one design. Marriage was designed by God to be the light of Christ to the world, and though that design doesn’t mean marriage has to look one specific way, His light can be portrayed through different circumstances in different ways.

As the healthier person in this marriage, I have been taken down a road of humility and grace. This journey, designed by God, has now given me the eyes to see people I have never thought about before. So to you, I hope God will open your eyes not only to where you can grow to be a godly, supportive spouse, but to also have your eyes opened to where God is desiring to change your life’s perspective to become more like Him. It will hurt. Give yourself time to grow. Remember, though, He is still with us in those hard times and He is walking us down a road we could have never imagined on our own.

Over the next weeks, months, and years as we tell you our story, we pray this allows you to ask questions about our Jesus which are all answered with one simple phrase:

“Neither one of us deserved love; but Love Himself decided to love us anyway.”

To those of you who asked the questions roughly quoted at the beginning of this post, hopefully you’ll come to understand what we have fallen in love with. We needed Christ more than we needed each other, and we “make it work” by asking God to give us the strength to not ignore when marriage is hard. Because, if we focus on Him, the spirit-deep turmoil and unique challenges of a marriage with disabilities is so very worth every second.