Afraid to See Again

The surgery-induced blindness in my right eye is going away. After 10 years of learning to laugh at myself when I walk into pillars, people and posts, my 15% vision is finally gaining strength. According to the optometrist, I currently have somewhere in the zone of 35% vision. I should be excited about that. 

I’m… not. I’m not excited at all, actually. 

Logically, my random vision increase helps in unfathomable ways. Driving will soon not be a terrifying prospect. Most assuredly, it’ll be nice to see what my crazy cerebral palsy impacted right hand is up to all the time. Blindness isn’t convenient. 

So why do I care?

I hate my vision coming back because I’ve gotten used to the darkness. I’ve gotten used to living in such a way that compensates for the inconvenience and pain. It’s a lot easier for me to act as if I didn’t see things that hurt my feelings, gamble away my trust, or helps the people in my life think they got away with a lie. 

As weird as it sounds, living in darkness is comfortable. As my sight increases, I’ll get over it, though. 

I’ll get used to seeing the sun come in my window, and I’ll learn to love it again.  But first, I have to trust the difference. I have to trust that I really am seeing the silouette of a friend and the differences between green and red. If I don’t let my eye try to perform differently, I’ll lose vision again. 

How many times do I do the same thing with my sin? How many times does God whisper to my heart, “I turned your heart away from that habit a long time ago. Stop acting as if you need it more than you need Me”? But instead of agreeing and living in freedom, I act like I don’t know what freedom tastes like because I’m too used to my chains. 

…and the chains are comfortable.

How much of our sin nature exists because we’re too afraid to take God up on the promise that life can be different? What would happen if we trusted Him enough to try?

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Showers, Laughter, & Insanity

Living with hyper-tension spastic cerebral palsy has always been a fast track to weird. I realize that’s not proper English, but the disorder isn’t socially proper, either, so I’m making an exception. 

There’s a reason why, when I’m in public, my closest friends and relatives are on alert, watching out for the right side of my body when I’m tired. My palsied right arm and hand can get into anything and anyone within moments, especially when I’m too tired to go above and beyond to control it. 

My friends play the game like champs but there have been days when I can tell I’ve just done something to someone and maybe I really don’t want to know specifics. 

Let me clarify: The right side of my body has limited feeling and it mimics anything my left hand does. For example, as I type this with my left hand, my right hand is sitting happily between my legs hopping up and down like a circus clown because it wants to help and doesn’t know any different. In layman’s terms, it does its own thing and some days, I’m completely unable to tell it to stop or explain what it’s doing. 

Cerebral palsy. You have to laugh or you’ll die from embarrassment. 

Tonight, I ’bout died laughing and no one (Praise Jehovah) was around to actually see it. Showers, to keep it shallow here, are an adventure when I’m tired. If I don’t somehow imprison Righty, it knocks over every container, pushes against every wall and even picks up razors. (I can see it now: Headline- Woman killed by her own self. Not seen as suicide. Story at 11.)

So, anyway, I do what any other daggum independent 20-something with cerebral palsy does: I put the right hand behind my back and there it stays so I can shower in peace. Simple. Right? 

Wrong. 

“Shower,” in my book, is code for “Daydream and fix everything.” Sometimes, I totally lose track of everything – including Righty – because I’m too busy overthinking about something. 

All the sudden, in the middle of my moment of serenity tonight, I feel this tiny hand on my back. Scared me so badly I literally backed into the wall to get away from whoever it was in the shower with me. It then dawned on me, ever so mercifully before I escaped from the shower altogether. 

The hand on my back was my hand. Yep. That just happened, y’all. Insanity comes in stages, right? 

Living Beyond Assumptions

All he did was asked questions over an article. 

His eyes got as big as saucers as I explained the medical journey behind the 1,800 word synopsis being offered to a publication company. One explanation led to another… And another… And another. The questions were painfully typical and mundane. I felt as if I was answering the curious questioner in my sleep. My writing had led me towards this type of impromptu interview before. 

But then, he said it:

“Wow. I guess you’re really not that frightening at all. Listening to your story, hearing you explain it, everything that made you super uncomfortable (to be around) makes so much more sense. I never would have guessed… Like, geez, you’re great.”

He smiled the smile of a man who wanted to be applauded for a gracious compliment. I smiled a smile that threatened to whisper, “Because I love Jesus, I won’t break your nose when I punch you.” I’m 26-years-old and people’s fears over my disabilities still make me crumble to the ground in tears. Being afraid of my disabilities is understandable.

But if you suffer silently through those fears, all you’re saying is that you’re afraid of me

I can’t say I’m much better than this poor man who has become a victim of my sarcasm. I giggle at the differences within the disabled community because, even though I may feel uncomfortable at times, I feel accepted. But don’t you dare ask me to be open in other areas.

My biggest fear and struggle is learning how to talk to an addict like an equal. They’re my equal? Wait… You mean they can hold a conversation?

This isn’t a discussion about right or wrong, normal or abnormal. Our society has become such a culture of hiding behind assumptions we have become our fears. 

My young friend saw my differences the moment he met me a year ago. He was too afraid to ask.

I have reasons to be afraid anytime I’m around a person who abuses drugs. I’ve been at the mercy of certain addicts’ evils before. But believe it or not, when you can get them talking, they simply want to be seen and reminded of their value. I often forget that because I can be too afraid to write an exception to my self-righteous rule.

I learned a long time ago that God never told me my comfort was His first concern. His command is to love those around me no matter the cost. 

If I live in fear of the unknowns, I’ll never experience the joy of living fully by loving those I don’t understand.

Stuttered Leadership

“Your stutter disappears when you sing. It’s like Moses – so cool!”

To be quite honest, the very first thought upon hearing my acquaintance’s thoughts weren’t very nice. I handle being observed a lot better 1-on-1 than I do in a Church crowd. I wanted nothing more to deny I had a stutter at all. It only made me stutter more. 

Though I somehow got through the totally unexpected comment, I walked away with only one question on my mind:

Why? 

The man was right. When I sing, you would never know I struggle with English. When I sing, no one has time to ask questions about my authority in being on stage. I always wanted to be a singer. Up until I was 19, there was nothing I wanted more.

Why couldn’t God agree to re-writing my story so my life and career could be something I’m comfortable doing like singing?

As it stands, I’m pursuing a career in writing and secondly in ministry – two things I’m highly uncomfortable doing but have been firmly called to do. (We would include the whole bit about what God has called me to in relationship here, but that’s just not gonna happen) Every time I step into ministry, I’m nervous. Every time I write, I can hear myself questioning what the heck I’m doing. 

I feel incredibily inadequate in the shoes God has commanded me to fill. The sweet congregant’s comment about my “stutter” just made me realize it in a different light.

I started pitying Moses. I mean, he was probably a blastedly good shepherd. Exodus shares that he was a shepherd for 40 years. I betcha a million dollars that man ruled the whole sheep-thing. He was probably really comfortable with his dumb animals in the desert.

But regardless of his comfort level, God, in His infinite wisdom, put the stuttering shepherd in front of the Egyptian King and in charge of an entire nation. Poor, poor Moses. The guy just wanted to be comfortable. But… You can’t challenge a king and a nation without talking, stutter and all.

Moses really wanted God to pay attention to the fact that he stuttered. God paid attention to it and made him the leader of exiled Israel anyway. Again… Poor Moses.

Again… WHY?!

I struggled the rest of the day (okay, I’m still struggling) with the fact that, according to one man, my inadequacies are out in the open but God still has me up front in a leadership role. I would love to now leap into a long, divine monologue God gave me late at night answering every deeply seeded need in my heart. But I can’t, cuz hallelujah, He didn’t give one. I was only reminded of one very hard, incredibly gorgeous truth:

When I am seen as inadequate, people are led to look at Christ who is more than adequate. 

Don’t Touch My Butt

Though humorous, the question is never easy for me to answer.

“Why’dya touch/hit/grab my butt?!” I’ve heard that question a million times. If I didn’t like being alive so much, I’d answer sarcastically just to hide my blush and/or deep desire to laugh and cry simultaneously.

I tell people not to scare me. It used to be because my epilepsy was a ticking bomb and scaring me made the bomb go off sooner. But I can’t blame this one on my epilepsy. I wish I could. “Sorry, Dude, before I have a seizure, I have to touch someone’s butt.” I’m not a creeper.

Unfortunately, it’s due to the joys of having hyper-tension spastic cerebral palsy. Basically, all that means is the verse that says, “Don’t let your right hand know what your left hand is doing” is quite Biblical in my li’l body. Yep. 

The tension/spasticity  gets worse when I get scared and don’t have time to literally talk my limbs out of moving. I sound like an idiot, but there are days when a siren scares me to death and I can be heard mumbling, “No, no, no. Stay where I put you…” If you ever hear that, just ignore me.

Some days, I think I’ve conquered the whole “be humble and filled with the Holy Spirit” thing. Then I’m reminded by my disobedient limbs that I still have a ways to go. 

It’s moments where the “butt question” is raised where my pride is hurt but my heart is shouting, “Jesus! I don’t want this to be about me… Please. (Make me disappear for 30 seconds).” Being humble is a constant pursuit. For whatever reason, my Creator decided I needed my very own, permanently attached reminder.

But I’ve also learned that when all else fails, breathing deep and laughing anyway works better than attempting to explain it away. 

Heck, what else am I gonna do?

Value More Than Love

If I’m not leading with a joke about my half-brain, quirky limp or down right weird spastic right arm, something is seriously wrong with me. 

Not kidding… If my circumstantial frustration isn’t followed up with a quip, I must be dead.

This week was different, though. This week, I fought with a vengeance to hide my shortcomings. This week, when my loved ones joked about my half-brain, instead of joining in on the fun, I silently begged God to remind me what it meant to be loving. I knew my fun-loving attitude would come back eventually, but for some (unknown and short-lived) reason this week, with every joke, my heart whispered only one thing:

What is my value, then?

My heart’s poorly timed dilemma this week took me on a totally different view of God’s love and His creation.

In Genesis, when God created both man and woman, He pronounced them “Good.” He didn’t pronounce “I love you.”

He saw in them value — whether Adam and Eve exuded perfection or not was not the issue, He spoke value over them, anyway. He looked them in the eye and said one word, “Good.”

I wonder, did Adam and Eve learn to love their Maker because He did not spare a moment in speaking of their value? Did they fall in love with Him, learn how to trust Him, because they knew their value in His eyes? 

Is it possible His love for them wasn’t questioned simply because they saw love in the value He placed on them?

I wonder how many times we say “I love you” simply because it’s culturally relevant and expected. Though it’s an excellent aspect to share (I really love love, I promise), how many of us ask to hear “I love you” and really what we’re asking is affirmation of our value?

How many of us assume that everyone knows their value when in reality, God is asking us to be His voice for them because the world has deluded their ability to hear their value and believe it’s actually theirs?

Sometimes, proclamations of value speak louder than reminders of love. 

Ironic Purpose, Meaningful Life

“You’re letting me die and I haven’t even been kissed, gone to Prom or gotten my driver’s license. Okay.”

Tomorrow it will have been 10 years since I mentally went through and prayed about the things I thought I’d never experience as I was being prepped for brain surgery. Those three things were what stuck out as important… and those were the three things I was more than willing to give up if it meant God would take me Home instead of “making me” live.

Oh… How things have changed.

1o years later, none of those things are drastically important to me. I had to laugh this morning as I remembered my almost 16-year-old brain thinking my life was incredibly boring because I didn’t have those things. I was so enraptured by the lack of those experiences I even dreamed about them… I thought those dreams were all I’d have before looking my Savior in the eye.

This morning, I was humbled by the fact that such a memory brought joy, not mourning. Then I heard my heart cry, “You have so much more for me to do, Lord. Keep me here. Find me faithful. I’m not done yet.”

It’s been 10 years of joys, trials, tears and laughter, but God kept me here for a reason. I used to happily tell people my life’s purpose was to be a testimony of how to suffer and die with joy. Not kidding. Now, I’m starting to believe that I may be the last person God takes Home, simply because He really enjoys irony.

The idea of “knowing your calling” as a Believer in Jesus Christ has become a dramatically important thing. There are so many books on the topic (Thank you Os Guiness…) I’m fairly certain it has its own section on the self-help shelf at bookstores. I often feel as if I disappoint older Christians when I don’t tell them specifics in regard to what my “calling” is. Wife? Mother? Writer? Journalist? Teacher? … Hobo???

Who knows. But my ultimate calling has been ironically and beautifully defined. I have been called to plan for the moment yet live for an undefined, God-filled future. A future that I couldn’t dare to dream about as I signed a Do Not Resuscitate order 10 years ago. 

Come what may, I know the price of living on my deathbed. Now my God is giving me the right to discover the epitome of what it means to truly live.