Silent Screams 

Whether you want to believe I’m an introvert or not, the one thing I’m not is silent. The command to “wait patiently” infers the command to be quiet and not jump ahead of the Lord. I have yet to experience a moment where that was my first choice.

“I waited patiently for the Lord; He inclined to me and he heard my cry.” (Psalm 40:1)

The idea that I’ve waited patiently for the Lord is a relative statement. Waited? More like asked God to give me what I want and then clean up whatever mess I leave behind. Patiently? What? That’s a… that’s a thing?

The promise that my God has heard my cry has been overwhelmingly seen in my life. He holds the definition of my tears even when I do not. The fact that he inclined to me is proof that he understands that, sometimes, he has to fix the small, inconsequential things within my mind before I’m ever willing (or even able) to wait and be patient.

I put the cart before the horse again recently. I asked God to show up. He took too long. I panicked. I’m not very likable when I panic, by the way. {Insert horribly indecent joke about being female here.} When I went about fixing what I was fairly certain was broken, I could almost hear God mutter, No, Baby Girl. You don’t want to fix that. Stop it. Hold on. You’re heart wants more than your actions will get you. Hold onto Me. Wait for Me. Be silent and wait.

Yesterday as I watched God answer my heart’s cry before I could even understand its need, I almost laughed at the beauty. Despite my shortsighted assumptions, He stepped over what I thought I wanted and gave me what I needed. It hurt like nothing I’ve ever experienced, but within the pain lies the glory of God’s faithfulness.

When Psalms 40 is quoted, often time it is only quoted as an encouragement that God will hear us and we “simply” need to wait patiently. The reality is, that’s not where the Psalms’ deepest beauty is found. The deepest beauty is found when we come to terms with the fact that God inclines to us and hears more than just our prayers. 

He hears our hearts no matter how silently our hearts may be despite the words we shield it with.

Living Beyond Assumptions

All he did was asked questions over an article. 

His eyes got as big as saucers as I explained the medical journey behind the 1,800 word synopsis being offered to a publication company. One explanation led to another… And another… And another. The questions were painfully typical and mundane. I felt as if I was answering the curious questioner in my sleep. My writing had led me towards this type of impromptu interview before. 

But then, he said it:

“Wow. I guess you’re really not that frightening at all. Listening to your story, hearing you explain it, everything that made you super uncomfortable (to be around) makes so much more sense. I never would have guessed… Like, geez, you’re great.”

He smiled the smile of a man who wanted to be applauded for a gracious compliment. I smiled a smile that threatened to whisper, “Because I love Jesus, I won’t break your nose when I punch you.” I’m 26-years-old and people’s fears over my disabilities still make me crumble to the ground in tears. Being afraid of my disabilities is understandable.

But if you suffer silently through those fears, all you’re saying is that you’re afraid of me

I can’t say I’m much better than this poor man who has become a victim of my sarcasm. I giggle at the differences within the disabled community because, even though I may feel uncomfortable at times, I feel accepted. But don’t you dare ask me to be open in other areas.

My biggest fear and struggle is learning how to talk to an addict like an equal. They’re my equal? Wait… You mean they can hold a conversation?

This isn’t a discussion about right or wrong, normal or abnormal. Our society has become such a culture of hiding behind assumptions we have become our fears. 

My young friend saw my differences the moment he met me a year ago. He was too afraid to ask.

I have reasons to be afraid anytime I’m around a person who abuses drugs. I’ve been at the mercy of certain addicts’ evils before. But believe it or not, when you can get them talking, they simply want to be seen and reminded of their value. I often forget that because I can be too afraid to write an exception to my self-righteous rule.

I learned a long time ago that God never told me my comfort was His first concern. His command is to love those around me no matter the cost. 

If I live in fear of the unknowns, I’ll never experience the joy of living fully by loving those I don’t understand.

I Wish I’d Known

In most people’s eyes, I had everything a 22-year-old wanted. I had my independence, a great job, friends and accquaintances on both sides of the religious spectrum. I’d sown my oats and lived to tell about it. I needed nothing. 

I was voted “Most likely to get hitched and have 3 kids by 19” in school. At 22, I was about the only one who had never filed for a dependant on my taxes, left the country to explore or declared a pursuit of some high-falutin’ doctorate. As far as the dating thing went, let’s face facts, shall we? When your fellow 20-somethings harken back to school days and the once-popular football guys still chuckle that, “You don’t mess with Harris. She’s a piece o’ dynamite” you get friends, not dates.

With the ever increasing use of social media, I saw all my friends pass me up. Dating relationships, amazing careers, marriages, kids… Fame. They had it all it seemed, and I was stuck in the town where every time you sneezed the mayor requested a new weather report. 

I wanted to be noticed. I felt hidden. I wanted someone to want me… I felt overlooked. People said my high-end(ish) job made me successful. I felt stuck and taken for granted. This was adulthood? Would I ever see beyond the 7,500 people who could still recall in great detail what buck-teethed, awkward 9-year-old me was like?

I missed out on so much because I was constantly comparing my journey to someone else’s or knocking on Heaven’s door asking for a preview of my exciting life 15 years down the road. I wanted everything that wasn’t mine to have. Very rarely did I giggle at the silence and dance when the music stopped.

No one ever told me my desire for more would make my life have meaning if I could be content. The last words out of my mouth at night wanted to be, “Thanks, I guess, for my loneliness, my boredom, my routine, my annoying ho-hum, do nothing life. Yay air. Amen.” To be content in those things? What was the point in moment-by-moment, not fantasy-by-fantasy or expectation-by-expectation?

Doing that would require being content in the constant Person of Jesus Christ. That would require being accepting of the fact that experience builds character, and sometimes that character has nothing to do about me. Contentedness means appreciating loneliness and routine because, if I’m willing to listen, I’ll have more time to pray for people and be a part of an unseen battle.

At 22, no one saw the need to tell me my “stupid routine life” mattered. As a 26-year-old, I wish I had known then the joy of sacrificing my expectations at the feet of the Master who knew the beauty of my future.

I wish I had known the beauty of taking the time to ponder the vastness of never being bigger than the God I serve.

No Longer Beautiful?

As an epileptic teen, I had a body that made the models jealous. When you have a seizure 20 times a day for 5 years, fat doesn’t have time to accumulate on your frame. My parents tried everything. There was a season where my daily diet included potato chips and a large strawberry milkshake. (To this day, my mother harkens back to how bad of an idea that was because she had to get a milkshake, too.)

No luck, though. I was 18 years old, 85-90 pounds and I had muscle in places that made people talk. I loved it, to be honest. I thought it was funny. In secret, it became my identity — My claim to fame outside of the doctors and blood draws.

 Now though, in my mid-twenties and relatively healthy, I read off those stats and I get that beautiful glance that says, “It’s not polite to tell you you’re lying, but there’s no way you… Yeah, no.” Whereas once upon a time I felt as if I could lift anything, now I’m thankful when my arms are free of anything.

I cried when I put on a size 2 jeans my freshman year of college at 19 years old. Cried. As in, oh my word, my world is over. I’m a frikkin’ size 2. I was always told my size made me beautiful. Maybe the well-intentioned souls that uttered those words meant it made me more beautiful. Who knows. That sentiment ends depending on the number of your jeans and the letter in your shirt, apparently?

When I put on a size 6 at 22, I’m fairly certain I had the fleeting (not acted upon) thought, “Jesus, 5 seizures will make me lose a size; whatdya say?” Needless to say, I never got my wish (halle-frikkin’-lujah). A size 6, to be fair, would be heavenly these days. Just sayin’. 

I hate to admit it, but after 18 years of not having to work at turning heads, there are days it’s all-consuming to realize I’m not someone who stands out in a crowd. Americans have completely re-written the definition to “beautiful.” 

I’m not saying it’s wrong to work towards being healthy. By all means, dang it, do it. But someday soon, can we stop only reserving the word beautiful for the women and men that look like they belong in a fashion show?

 As Christians, it’s very easy to see what the world has done to beauty and stand around critiquing the critique of the critique. Why do what we can to change things when we can just put our 2-cents in and walk away without any responsibility in changing what’s wrong with our world?

I challenge you, I challenge myself, to live with the Biblical definition of beauty written on our minds.

Love for others and love for God. That’s it. That’s all beauty really is.

Don’t Touch My Butt

Though humorous, the question is never easy for me to answer.

“Why’dya touch/hit/grab my butt?!” I’ve heard that question a million times. If I didn’t like being alive so much, I’d answer sarcastically just to hide my blush and/or deep desire to laugh and cry simultaneously.

I tell people not to scare me. It used to be because my epilepsy was a ticking bomb and scaring me made the bomb go off sooner. But I can’t blame this one on my epilepsy. I wish I could. “Sorry, Dude, before I have a seizure, I have to touch someone’s butt.” I’m not a creeper.

Unfortunately, it’s due to the joys of having hyper-tension spastic cerebral palsy. Basically, all that means is the verse that says, “Don’t let your right hand know what your left hand is doing” is quite Biblical in my li’l body. Yep. 

The tension/spasticity  gets worse when I get scared and don’t have time to literally talk my limbs out of moving. I sound like an idiot, but there are days when a siren scares me to death and I can be heard mumbling, “No, no, no. Stay where I put you…” If you ever hear that, just ignore me.

Some days, I think I’ve conquered the whole “be humble and filled with the Holy Spirit” thing. Then I’m reminded by my disobedient limbs that I still have a ways to go. 

It’s moments where the “butt question” is raised where my pride is hurt but my heart is shouting, “Jesus! I don’t want this to be about me… Please. (Make me disappear for 30 seconds).” Being humble is a constant pursuit. For whatever reason, my Creator decided I needed my very own, permanently attached reminder.

But I’ve also learned that when all else fails, breathing deep and laughing anyway works better than attempting to explain it away. 

Heck, what else am I gonna do?

Not a Laughing Matter

Death really isn’t funny. I’ve tried to create pithy, truthful – yet slightly sarcastic – thoughts on death. But, I… I just can’t. I’m processing the 5th death among my friends in the last 3 weeks. My humor quota is not prepared for that.

Granted, some of these individuals I know their story and their struggle more than I know them. I was brought onto the scene when death wasn’t a “someday” but a slightly certain “soon.” In some ways, my prayers and tears touched them more than my arms ever did.

The most recent heartbreak was the father of a student I had only met recently, yet somehow, myself and several others within the church felt a responsibility toward the family. As I walked home after hearing the news last night, I had to face the terror of uncertainty.

Uncertainty changes your emotions in a heartbeat. In view of this father’s death especially, there are a drastic amount of unknowns on the table. Instead of glorying in the certainty of Heaven, we’re left with a question mark. Instead of knowing we can still love on the family left here for a time, we have no idea what God has planned. 

Like many other times in the past, I could barely hear God’s Truth in the midst of my processing. I wanted answers… The question was, could I shut my mouth long enough to hear them?

Remember My Truth, Beloved. I’ve already told you, but I can tell you again. I (the Lord) will wipe every tear from your eyes. (In God’s time) there will be no more death, or mourning or crying or pain… (Revelation 21:4)

Oh, Death, where is your victory? Oh, Death where is your sting? … But thanks be to God, who gives us the victory through our Lord Jesus Christ (1 Corinthians 15:55-57).

Often, my heart is only focused on the here and now. Right now, my heart is mourning the loss of 5 people. But God is bigger than Death. God is bigger than sorrow. God is bigger than my uncertainties.

In that, I can laugh… Death has not won.

Silencing the Parents

I was always that kid who moved mountains to keep things level.

I’d love to say my fear of disrupting the peace was something I sculpted into my pint-size personality over time, but that’d probably be a lie. As a 6 or 7-year-old, I heard my parents discussing finances (not arguing, fighting or crying… discussing) after they’d sent me to bed. I heard the phrase “we can’t do that right now” and took matters into my own hands.

From then on, I struggled to tell my parents what I wanted (Suzy Home Bake, anyone?) or what I needed ($15 for band supplies or fail the class…?). Now that I’ve been ‘adulting’ for a few years, I understand what my parents were doing that night. Their hesitation over the checkbook didn’t mean I was a burden as another mouth to feed. It didn’t mean I wasn’t wanted. It just meant budgeting would be a good idea for the next 15 days.

Sidenote: For all I know, they could have been talking about putting money towards a road trip, not some desperate necessity.

It didn’t matter what the scenario was, though. I wasn’t going to be a burden on my parents… 

Anytime I talk to my mom about my annoying people-pleaser skills (I mean ‘tendencies’) as a child, the reaction is always the same — utter frustration, heartbreak and an explanation of reality. It’s all stuff I’m completely aware of now, but the underlying question is still there: Why was letting your dad and I provide for you so hard for you to do?

I, unfortunately, don’t have an answer for her. All I know is I was fairly positive I understood life and could help my parents survive it by knowing more than they did. It’s sad. It’s unfortunate. Honestly, the idea of my future child doing that makes my blood boil.

But the reality is, no matter how much logic I can pour into that misconception to make it disappear, I’m still in danger of doing it. Only now, I’m the adult-child kneeling before my Heavenly Father uttering the words, “I don’t think I should bother you with this heartache…” 

Without hesitation, I hear Him chuckle as He replies, “You know better than to think that, but since you do, come sit with Me anyway. I just want time with you.

And, just like my earthly parents, as I sit with my Father God, I start to understand He understands me better than I understand myself. He knows what I need and, though it feels life-threateningly large to me, He handles it because He can.

Wait, what was I worried about, again?